life on the "j" train

Taking a "busy working mom with 2 special needs kids" life one moment at a time

The best-laid plans of mice and men often go awry April 17, 2017

Filed under: ADHD,Autism,Family,Life on the Jay train,Marriage,Special Needs Kids — the jay train @ 9:33 am
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We had such a great day on Saturday.  Ace and I went for a beautiful bike ride on a path that runs along our local river while Jay continued to practice his 2 wheel bicycle riding skills.  The four of us hung out at the rivers edge and watched as people fished.  The fish were biting that day.  We sat outside and had lunch at a lovely Italian restaurant.  The weather was simply perfect.  Back at home, the kids hung out and played with electronics while the adults took a nap.  As I told a lady I met on the bike path, it’s a lot easier to ride uphill when you are 10 years old.  Following naps we got some dinner and then went for ice-cream and Italian ices.  It was just a very nice, well-rounded, happy day.

Piggy backing on Saturdays good vibes we were so full of optimism that we decided that on the following day, after Easter service at Church and egg hunt, we would take some family pictures before going home to open Easter baskets.  We made sure to let the kids in on the plan. They were both down for the cause.

 

On Sunday we all got dressed up nice and fancy.  Church was great!  The kids did an amazing job.  Immediately after the service there was an egg hunt and literally ONE minute into the hunt, Jay bumped his head on a sign and it was all downhill from there.

 

 

He was in a sour mood and nothing we said could fix it.  There would be no family pictures.

Ace, bless his heart, really tried to salvage the day and said “I’ll still take pictures with you guys if you want.”  We did.  We got really cute pictures of Ace by himself, in all his bow tie glory.  We got pictures of him and I as well as him and Shaunie.  Then a stranger got one of the 3 of us.

All this while Jay sat in the car sulking.

 

Once we were done taking pictures we went home where Ace opened his Easter basket and was thrilled with his goodies.  Mini transformer toys, a couple of comic books and of course candy.

Jay went to his bed and his basket is still sitting on our living room floor.

 

As was planned, CC and Emma came to pick the kids up in the afternoon since they are on spring break this week.  They will spend the entire week in New Jersey.  This is a good thing because it’s important that they spend time with their dad and his family.  They will get to see Nanas.  It’s also important that Shaunie and I get a little break.

I was really disappointed with the direction the day took – But these things happen.

The good news is that when I checked in with CC, he confirmed that Jays mood had improved and Ace was his typical happy self.

Shaunie and I watched a comedy and then went out to dinner at a place that doesn’t serve chicken nuggets and waffle fries.

Waitress:  Would you like a 5 oz or an 8 oz glass of sangria?

Me:  The big one.  Give me the big one.  Thanks!

 

Jays Easter basket will be here when he gets back, still stocked with all his favourite things and we can always try again for the pictures on another day.  Our little town has lots of picturesque places and now that the leaves are back on the trees, it’s even more beautiful.

 

At the end of the day I am glad we had Saturday and I am glad that everyone has cheered up and I did love all the greetings shared among family and friends from all over the world.  I got new pictures of my niece who is the cutest niece that there ever was.

I hope everyone had a happy Easter and that all your plans played out just the way you hoped.

 

Cause & Effect April 7, 2017

Picture this …

Jay on his scooter, Ace on his bike, slick roads from recent rain – and the next thing you know, there is blood everywhere.  It was coming from Jays face and from Ace’s knee.

 

Now, when you are the only parent home and 2 bleeding children come running into the house and they are both screaming about the pain they are in, there is a certain amount of panic that immediately hits you.  Who do you tend to first?

 

After a quick assessment I determined that Jay needed more intense service but Ace’s injury would be more easily tempered.  So, I slapped a band aid on Ace to cover the bleeding.  (I would clean it later).  Then I turned my attention to Jay.  The poor thing had what looked like a bad gash on his upper lip and some minor ones on his chin.  I couldn’t tell if the blood in his mouth was as a result of the lip or if he had done damage to his gums as well.

 

After some careful washing and rinsing, I determined that all the blood was coming from his rapidly swelling lip.  I managed to get him cleaned up and I put some antibiotic cream on it.  It wasn’t as bad as it had initially looked.

 

But none of that is what I want to talk about.  I want to talk about how amazing Jay was throughout this ordeal.  He was clearly in a lot of pain but he tried so hard to hold it together.  When I asked him to wait one second so I could slap the bandaid on Ace, he did.  When I asked him not to touch his face with his sleeve, he moved his hand away.  When I asked him to rinse his mouth with water, he did, even though he was scared that it would cause more pain.  When I let him know that I was going to have to touch it to clean it and apply ointment, he nodded his consent.

 

When it was over, he said:  “Mom, do you know what that was?  That was cause and effect.  The cause was that Ace and I crashed and the effect was that I got bleed.”

I let him know that he was absolutely right and that I was very proud of him for being so strong.

Then we curled up in bed and cuddled for a bit.  After a while I asked him how he was feeling and he said it was getting a little less hurt but that he was ok.  He even smiled for a picture.

 

Then this morning, my sweet boy, who the internet will tell you lacks empathy due to his autism, asked Ace how he was feeling even though he, Jay, had gotten the worse injury.  Ace assured him he was fine and in turn asked Jay how his lip was.

 

Happy Friday everyone … May you all have a great, no bleeding, no lip swelling day.

 

 

“Can you send them out to play?” March 28, 2017

I pull up to our mailbox and am met by 2 little boys on bikes; Victor and Chase.  They live in our neighbourhood and are out enjoying the nearly 80 degree temperatures.  Everyone feels good when the temps start heading into the 70’s and 80’s after winter.

Victor greets me:

 

“Hi, what’s your name?  You live right there right?  I know your son.  Well, both of them.  Do you ever go to Tory’s?  My Mom works there.  Where are your sons?  Can you send them out to play?”

 

I tell him that once I get inside I will see what they are doing and I’ll let him know.  Chase, who is only 7, assures me that it’s OK for me to send them out, because he’s old enough to take care of them.  It makes me laugh.  Kids are the best.

 

Even though he had already showered and was already pajama’d, Ace was all in.  Jay thought the hassle of changing clothes and then re-showering was not worth it so he opted to stay inside.

 

Ace, now back in the clothes he had worn to school, grabbed his scooter and off he went.

Shaunie and I enjoyed our own version of the nice weather.  Dinner in the kitchen with the door open, cold beers and a quiet house.

 

After some time, Ace came in to say that the boys had decided to eat their dinners outside together.  At this point, Jay was half way through his own dinner, but as it turns out, eating outside > changing clothes and taking 2 showers, so he too, lost the pj’s, grabbed a scooter, his plate, his cup and was out the door in a flash.

 

*When did we get to the point where I could allow Jay to go outside and play without any adult supervision?  No, seriously.  Who are we?*

🙂

 

Despite the major shake up in the routine with the eating outside and the other boys still outside hanging out, while we were upstairs we heard Jay come inside.  He had come back to wash his plate and cup.  Because that’s what they do.  They eat, and then they wash their dishes.  And well … Autism.

Ace did not come home to wash his dishes and in fact, we realized later that night when they were already asleep that he never brought his stuff home at all.  So our neighbours probably have a plastic plate and a cup sitting on their front grass right now.  Because, well … ADHD.

 

THIS is what I like.  Simple, happy, days.  This is the life I want for my boys.  I love to see them this way.

Lucky for me, they all made a plan to meet up again this evening to have some more fun.

 

Where Do I Go With This? March 9, 2017

 

If you were among the first to arrive at the party, you will remember that this blog began as a way for me to release lots of negative energy.  My older posts had a much different tone to the newer ones.  I will forever be grateful for all the support I received from my readers in those early days.  I needed it like I needed air.   I needed it to keep from drowning.

I no longer feel like that wobbly legged new-born calf.  I certainly don’t have all the answers; But I have learned to swim.  And if there’s a moment when my limbs get tired or I need to collect myself, I just take a break and float; And then begin swimming again when I’m ready.

The shift in the things I write about has been astounding.  Even though it’s happened over the course of 6 VERY LONG years, it has happened at lightning speed.

 

 

It has been feeling lately as if most of the things I have to share with people have been cute little jokes that are more fit for a Facebook status than a blog post.  Such as Ace having a girlfriend and telling me that he loves her big puffy hair and her calm voice while Jay wants to be a polygamist.

 

There have been conversations between Ace and myself which led to me telling him about this blog and his desire to read my posts.  (Hmmm)

Also, Ace has apparently figured out the meaning of life.  I know right?  Super impressive.

 

There was the time that Jay was supposed to go to karate class but behaved badly and had to be removed from the group for a while before he was allowed to return.  The thing is though, even that doesn’t deserve a big story.  In the past it would have been a whole post.  Nowadays though, when he has these moments they pass fairly quickly.  He finished out the class and had a good evening and is looking forward to the next class.

 

Last night was just another Wednesday evening.  Ace was in his room building something; budding engineer that he is.  Jay was playing with his toys and the next thing we know, we were all hanging out and being silly and playing and laughing together.  Yup, just another Wednesday.

Ace went into Jays room for something and came out holding his chest dramatically and saying “That’s it.  This is the end.  It smells so bad in there.  I see the light.”  It was hilarious.

 

Jay let me know that he will not use cuss words like the S word or the F word because he’s too cool for that.   Right on kid.  I’m not that cool, although I didn’t tell him that.

 

On March 22nd, we will take Jay to his first ever eye doctor appointment.  We have a suspicion that he’s not seeing clearly.  In the old days, the appointment itself would surely have been blogging gold.  They are going to do (or attempt to do) the whole works.  Pupil dilation etc.  If he ends up needing glasses, that would have been another post.

Now, I’m not so sure.  The entire procedure may be totally unremarkable.

We will see.

 

Ultimately, while I do love writing and all this leaves my blog future feeling unsure,  it’s a good thing.  It means life is good.

 

Balance February 16, 2017

 

Balance seems to be the name of the game lately.

 

Ace is learning some tough life lessons around how to balance being the nice, sweet, caring, polite boy he is without letting people take advantage of him or mistreat him in any way.

It’s hard when you start to realize that not all kids are nice.  Gone are the days when everyone is your friend and when everyone is truthful and when every kid in the class gets an invitation to the party.  I am worried about him going to middle school in September as I think these issues will be even more plentiful and emotions will run even higher as puberty hits them all. I don’t want him to get bullied.  I don’t want him to lose his kind heart.  I don’t want him to be the one hurting other peoples feelings.  I do NOT want him to back down from a challenger.   I DO want him to stand up for himself.  I want him to show strength and confidence.

At home – As the older brother we do hold him to a high standard and expect him to set a good example and we do allow him to call Jay out on things when he sees him doing wrong and we encourage him to help if he sees Jay struggling with something.  We do not expect him to be his brothers boss.  We want him to be nice to his brother and to play well with his brother but we understand that he needs his own space as well.  He needs to be able to say no to watching Teen Titans and to get the bathroom to himself and to deny his brother access to his room sometimes.

We are trying to guide him through all these muddy waters.  I hope we are doing and saying the right things.  Only time will tell.

 

 

Jay is learning some tough life lessons around how to balance holding firm to what he wants and managing his built-in social challenges while being nice and polite to others.

It’s hard when you are hard-wired to be singularly focused and/or routine minded but then someone else makes a change. He wants what he wants and we know that every fiber of his neurology operates this way but he does need to work with others.  He needs to share toys with his classmates and he needs to follow teachers instructions.  We want him to be his own person.  We want him to feel comfortable in his skin and to follow his own mind instead of worrying about what other people think.  We also know that it’s not cool for a 9 year old boy to go to school everyday carrying a stuffed rabbit.  We don’t want to set him up for teasing.

We do recognize that he has special needs but he’s not in a self-contained class anymore and as a fully integrated member of the general education class his behavioral outbursts are given less leeway  than they would be given in a self-contained class.  This class is what we want for him.  This environment is what he needs.  He does not always appreciate it.

At home – We want him to be nice to his brother and to play well with his brother but we understand that he needs his own space as well.  He needs alone time to play his video game on the laptop and the freedom to answer questions for himself and to deny his brother access to his room sometimes.

We are trying to guide him through all these muddy waters.  I hope we are doing and saying the right things.  Only time will tell.

 

 

 

Ice-Skating or Something Like It January 16, 2017

We spent the day on Saturday hanging out with friends.  We picked a 2 hour time slot and rented skates and we all took to the ice.  In all, our crew consisted of 8 adults and 3 children.  Yes, it was a birthday outing for little man and yes the adults far outnumbered the children.  So?  The people there were people who we love.

 

I wasn’t sure how this ice-skating trip would go.  We chose this activity after we walked by a park several months ago and Jay saw people ice-skating and said “I would like to try that.

My friend Juddles, texted me saying, “I’m terrible at ice-skating so I may only go around once and then sit out the rest of the day. If you don’t want to pay for my ticket, that would be fine.  I won’t mind babysitting the bags and watching you guys.”

I replied with; “Nope.  You’re doing it.  We’re all bad.  Plus, for all I know, Jay will go around once and decide he hates it and he might sit out the entire day too.”

 

We all ended up having a good time.  Some of us, while wobbly, were able to get around the rink without holding on or falling.  Some of us hugged the banister the entire way around.  Some of us got brave and took risks and fell multiple times.

No-one got hurt.

The kids each figured out their own technique.  Jay held my hand for his first trip around the rink and then he was on his own.  He walked/ran his way around and said he was having lots of fun.  I don’t think I ever saw him actually glide on the ice.  Ace developed a push with one foot and glide on the other technique.  Kind of like skate boarding.  Hey, whatever works.

 

Following the ice-skating we grabbed some food and then headed back to our house for more hanging out.  It was totally impromptu.  The kids disappeared to the basement while the adults congregated in the kitchen.  I guess, in that sense, every home is the same.  The kitchen becomes the hang out spot.  I really enjoyed our time.  My house was kind of a mess; No-one cared.  I spent time washing dishes while we were talking.  I forced them to try the peanut butter I like.  We face-timed with one persons mom.  She didn’t know us or us her.  I told one that he was the bartender and pointed him in the direction of the glasses.  We compared closet sizes and they liked our shower curtain.  We talked loud and laughed a lot!

 

I really love our circle.  I feel so blessed to know the people I know and to have them support us and our boys.  The outing was planned to celebrate Jays birthday but I’m pretty sure I got the best gift.

 

For My Enjoyment October 11, 2016

Filed under: ADHD,Autism,Special Needs Kids — the jay train @ 9:05 am
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This is a purely selfish post.  I assume most people will not be as amused by any of this as I am.  If this were back in the day when people kept photo albums, I would put these pictures there and that would be it.  Now, I get to put it on my blog for posterity sake.

 

OK, so here goes.  Below are 3 pictures that I took of school work that came home in Jays school bag.  Each of the 3 sheets shows his answers – Which while they are correct and I am so proud of how well he is doing in school – Was not what caught my eye.  My boy illustrated his work.  I will go on a limb and say he was probably the only kid who did that so I hope it brought some cheer to his teachers day when she checked it.

 

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In the above picture, the drawings that I am particularly fond of are the “wonder” and the “cricket”.  I also got a kick out of him drawing a Christmas tree for “marry”.  I am guessing that he thought the word was “merry”.  I do kind of wish that he had drawn something for marry.  I’m interested to know what his idea of marriage is.  What the picture doesn’t show is that he had erased the E in sundae and written in a Y.  Most likely because he didn’t know what a sundae was and thought there had been an error.  The E was put back in it’s rightful place and he drew an ice-cream cone.  So funny!

 

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In the above picture, I like the untied shoe lace but mostly, I am in love with the attention to detail.  Notably, the light on the dentists head and the closed eyes as the person uses the napkin.

 

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In the above picture, he not only drew pictures for each part of the compound word, but then also one for the compound word itself.  I love how he drew “soft”, and I am sort of relieved that he didn’t know how to draw “birth”.  There’s time to get to that.  The birthday hat took me more time to figure out than it should have.  My absolute favourite though, is the sunburned person.  You can see the dark colour and the heat radiating off them.  It’s fabulous!